December 2017

Every year on December 4th is Pallister-Killian Syndrome Awareness Day. This year we held an "I Love Lucy" ice cream social PKS fundraiser.  We rented Provo Library's Bullock room and had a great turnout and donation pool. 

Many family and friends came and wore black and red to support PKS. 

We met Sierra Paterson for the first time, one of the only few others with PKS in the state of Utah.

I created a picture slideshow to music with information about PKS and Lucy. It was a wonderful evening and we felt so blessed to have wonderful support nearby. 

Orem's Univeristy Place mall had a "Quiet Santa" opportunity to spend one-on-one time with Santa in their own room.  It was for children with sensory sensitivity and for those overwhelmed with crowds or noise.  It was so wonderful to have Lucy interact with Santa on a positive note without being rushed through a line or have a specific agenda.  Santa played with Lucy on the ground with bubbles and a toy train.  It was so nice having our own room without distractions or the possibility of running away from me. 

BYU had its' annual Christmas party in the Wilkinson Center with crafts, donuts and games. 

Provo city downtown held a "turning on the lights" celebration with fireworks and vendors.  We stopped in Pioneer Book for the incredible green tree book display. 

Ben's Strategy department held their adult Christmas "ugly sweater" party at Old Spaghetti Factory and Ben and his boss wore matching cat sweaters. 

We attended a few different Christmas parties through church, therapies and with friends. 

We were really excited to get tickets to the Stringtown Polar Express in Lindon. 

It was a miniature train ride for the family with a visit to the "North Pole" to see Santa. The kids loved it. 

William and Lucy enjoyed going to Let's Play Music, Sound Beginnings preschool once a week. 

We loved their teacher, Ms. Lily and Lucy loved learning the songs, instruments, and stories.

Maddie was the best baby all semester and mostly napped or watched quietly behind the kids. 

For Activity Days the girls made homemade gingerbread houses before Christmas break. 

We had a December visit to SLC for doctor appointments, visiting my grandparents, and seeing the temple lights.  It was a chilly, beautiful night. 

We hosted our third annual neighbor music family night.  This year we introduced everyone to the chimes and had fun ringing in the season. 

Before heading to Arizona for the break we went to a BYU basketball game with my best friend, Maren, and her husband, from Texas. 

Lucy's PKS friends around the USA put together a Christmas jammies exchange, and Lucy got these ones from a family in Minnesota.  They also sent her Frozen stuffed animals and a book.